a surprising and welcome event that is not explicable by natural or scientific laws and is therefore considered to be the work of a divine agency. #TrustInGod
This morning my wife and I were talking about our experience with Maddy; remembering how fast and unexpected everything was.
Angel took Maddy to CHOC Children's emergency room after she started vomiting again. Every month we seemed to be at CHOC with Maddy, and usually some fluids and antibiotics helped. This time it was different; within 48 hours Maddy had multiple seizures, and a stroke; was admitted into the PICU, put on life support, and showed signs of brain death. 48 hours. What a sleepless, emotionally exhausted, and traumatic experience. The Chief Medical Neurosurgeon was the first to tell us...”look guys, this is a controversial surgery that may save her life, or it may not. We don’t know. I will do my best, and treat her like my own daughter.” He let us know that we can basically go back to our room and prepare for brain death, or try something controversial. 48 hours. No sleep. Our baby is on life support. And they just RUSHED us all down to emergency surgery. Within 48 hours.
The surgery was a serious one! They’re going to remove my daughters skull. Are we really going to authorize this surgeon to remove my 5 year old kids skull?!?! All because of the flu? We only had one choice. Try to save her life, cry and pray. #TrustInGod
February 7, 2018 God looked down and granted my daughter a Miracle. Here she is now; riding a bike with her parents. Living a life with a second chance. Learning more and more everyday as she lives with God by her side. I truly believe Maddy has a direct connection with God, He listens to her, and Loves her. And I just pray to God that I never have to live another 48 hours like that again. -Amen.
This is Bowie! “This is Bowie she is 1 year old! She was born due to a placental abruption and had HIE (hypoxic ischemic encephalopathy) which cause severe global brain damage. She had a 36 day nicu stay, during that time she had seizures, 2 brain hemorrhages, and a pulmonary embolism. They told me she would never eat or breathe on her own. On day 10 she was breathing room oxygen and breast feeding! While she is doing much better than originally projected she is still dealing with low tone, esotropia, and she is delayed. She is not able to sit, crawl, or push up on her arms. She really trys and really wants to talk as well! I have never seen a baby try with all her might like she does. She is incredible. With that said we are seeking stem cell therapy and intensive therapy!Exposure to her instagram page and to her go fund me goes a long way! I also want to spread awareness of HIE and some other treatments that help tremendously that aren't so mainstream. And check out her GoFundMe! https://www.gofundme.com/f/stem-cells-for-bowie&rcid=r01-156522984639-faadbf2decd04ffc&pc=ot_co_campmgmt_m “ follow her journey @the_lifeof_ladystardust#bowie#1yearold#placentalabruption#hie#hypoxicischemicencephalopathy#braindamage#nicu#seizure#brainhemorrhage#pulmonaryembolism#esotropia#stemcelltherapy#intensivetherapy#gofundme#beautiful#defyingodds#strong#fighter#warrior#spreadingawarenessforall
This article is deceptive af. FULL BREAKDOWN:
The article says this girl from Iowa was suffering from a brain hemorrhage after an accident and her brain was slipping down into her spinal column. After they did their best to get her back, they said they were 95% sure she wouldn't wake from her coma and they took her off medications and oxygen-- declaring her braindead. The next day she began breathing on her own, it's almost as if she had a 5% chance of waking to begin with. But the article does not frame it this way. Instead, they make it seem as if the family praying had anything to do with the girl's recovery (everyone prays for their loved one's recovery) or their chiropractor.
Then they take a quote from the family saying “A couple of hours later, the doctor came in and *basically* told us, ‘We don’t know how to medically explain this to you, but she’s breathing on her own,'”. I highlight "basically" for a reason. This is not a verbatim quote from the doctor, it's a biased quote from the family, a family that obviously wants to believe it was God's doing. No. The doctors fought to save her. She was young enough and had the will to live. The doctors were doubtful that it was possible for her to come back but she did, so they likely said it was improbable based on their medical standards and not that there was no medical explanation. Very easy to misinterpret under a biased mindset, or maybe the doctors are just idiots.
At any rate, the Christian Right is just as bad as the Intersectional Left. They'll spin this story to suit their ideological narrative instead of just letting me read and feel inspired that a 15-yr old girl came back from the brink of death and now she's living a happy life. That's all I need.
CLC MEMBER FEATURE: Hi! My name is Libby. I have had multiple cavernous malformations, which are a cluster of abnormal blood vessels that burst causing trauma to the brain. It first started when I was 12. I had a horrible headache and gradually lost all function of my right side as If I had a stroke. The Children's Hospital of Philly doctors told my family that after I went through vigorous rehab I would be back to normal no surgery was needed; my symptoms only got worse.
That following year I had two surgeries and then the following year I had another at Boston Children’s. School was always harder for me with my memory, but I finished college and was going to PT school to become a neuro rehab Physical Therapist then while out with friends my right side went limp. I had another hemorrhage it took the next year of hospitals, 11 seizures a day, and doctors telling me it’s inoperable my surgeon at Boston Childrens accepted my case and now I’m going through neuro rehab to walk and get my memory back.
My goal is to open my own clinic for brain injuries and specialized clinic for pediatric brain injuries. Where they are not only treated for Pt, ot, speech, and cognitive but where our staff goes into the school and advocates. A lot of our injuries our invisible. Lastly how I got through this 18 year battle. My family, friends, and my Lord Jesus Christ.
I am determined to change the way invisible illnesses are treated.
So today baby was breeched, covering its face when trying to get a 3D image, and just being stubborn . Luckily, the ultrasound tech. was able to view the ventricles and ALL are measuring NORMAL!!!! Amen! After the ultrasound we had a follow up appointment to review the MRI results and it found that the baby does have a grade 1 hemorrhage(or a hemorrhagic stroke) on its brain and is considered stable. We are going to have some follow up testing done to see if my antibodies are attacking the baby and reducing its platelets causing the hemorrhage. If this is the case they will schedule a c section and take the baby early to reduce stress on the babies head caused during natural delivery. If test come back negative then we are going to try and have a natural birth at full term. Everything will now be transferred to another hospital with a level lll NICU due to the situation and possible complications after birth. Still some unknown but prayers are definitely being answered. Thank you for all your prayers and continued support!
🇲🇽 La hemorragia intracranial espontánea del recién nacido prematuro se presenta en aproximadamente 25 a 40% del grupo de pacientes con 1.5 kg de peso o menos de 32 semanas de gestación, cifra muy alta comparada con los RN a término con una incidencia de 3.5 de cada 1,000 nacidos vivos siendo este su trastorno neurológico más común. Se trata de una ruptura vascular en la matriz germinal subependimaria encontrándose intraventricular, en núcleo caudado o en el borde del tálamo. Este paciente prematuro de 31 sdg muestra un hematoma de 0.4 cm3 en el núcleo lenticular el día de su nacimiento con márgenes bien definidos, hiperecogenicidad, con un halo fino de edema y con vaso arterial atravesándolo. 5 días después sus márgenes son ahora difusos, su volumen aumentó a 0.9 cm3 y su ecogenicidad disminuyó, cambios esperados en la evolución de un hematoma. Sin embargo su topografía esta alejada de la matriz germinal. Este hematoma podría estar asociado a una malformación vascular? Cavernoma, Anomalía Venosa del Desarrollo o hemangioma? Que opina usted?
1 month ago
This is interesting for Friday! A Sunflower! 🌻🌼 The 'Sunflower Lanyard' is a way for people to indicate to staff across the airport and Sainsbury’s stores, that they may need additional care and support. 👍
Sainsbury’s has announced the extension of a NEW TRIAL to help enhance the shopping experience for customers with hidden disabilities. The trial lanyards enable customers with HIDDEN disabilities to collect a lanyard which indicates to colleagues that extra support is needed.
Heathrow Airport has also introduced the ‘hidden disability’ lanyards, including those with hearing loss. And APHASIA! 🙂
Next time you are in Heathrow OR Sainsbury, ask - it may very well help you or your friend to have a little bit more confidence. The super ladies at our Sainsbury's really helped me [Sandhy] a lot, and they are going to give us some more of the lanyards once they have them in. Then we can hand it through the Living with Aphasia peeps who would like it. 🤔😨 #aphaisasucks 🤣
1 month ago
A nice Asian salad that I added some raisins and almonds to! Along with some teriyaki chicken and some rice! Great meal! #fasterwaytofatloss#fwtfl maintaining and sticking to program when I can! Workouts to commence in September! When I hit my 6 months post #brainhemorrhage